Open part of the EJP RD Pillar2 Annual Retreat (Virtual Platform for Rare Diseases)
We are delighted to invite you to the Open part of the EJP RD Pillar2 Annual Retreat that is taking place on 03/05/2021.
The Pillar 2 of European Joint Programme on Rare Diseases (EJP RD) is developing a Virtual Platform for Rare Diseases allowing to find and query relevant resources (catalogues of registries; biobanks; data deposition platforms; animal models, cell lines and service infrastructures) as well as research data, samples, tools and standards to support and accelerate rare diseases research.
The leaders of Pillar 2 gather annually to compare the current developments of the RD data ecosystem for research against the needs of the end-users in order to adjust and plan the developers’ work for the next year.
On the 03/05/2021 an interactive discussion will be held between the Pillar 2 developers and the end-users (researchers, European Reference Networks and European Patient Advocacy Groups representatives) who are expected to provide their feedback on the ongoing as well as further development of Virtual platform and related activities.