CALL OPEN - Social Sciences and Humanities Research to improve health care implementation and everyday life of people living with a rare disease (EJP RD JTC 2021)
The Department of International Cooperation is delighted to announce the 3rd Joint Transnational Call (JTC 2021) launched by the consortium EJP RD (European Joint Programme on Rare Diseases) on the topic of
"Social Sciences and Humanities Research to Improve Health Care Implementation and Everyday Life of People Living with a Rare Disease"
The aim of the call is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with a clear future benefit for patients.
Research proposals should cover at least one of the following areas
- Health & social care services research to improve patient and familial/household health outcomes
- Economic Impact of Rare diseases
- Psychological and Social Impact of Rare diseases
- Studies addressing the impact/burden of the delay in diagnosis and of the lack of therapeutic intervention.
- e-Health in rare diseases: Use of innovative technology systems for care practices in health and social services
- Development and enhancement of health outcomes research methods in rare diseases
- Effects of pandemic crisis and the global outbreak alert and response on the rare disease field, and the emergence of innovative care pathways in this regard.
Other research topics are possible as long as they focus on SSH research and are not in the excluded topics list.
The following approaches and topics are excluded from the scope of the call:
- Interventional clinical trials to prove efficacy of drugs, treatments, surgical procedures, medical technology procedures. This also includes studies comparing efficacy, e.g. B. two surgical techniques or therapies. Clinical phase IV pharmacovigilance studies cannot be funded either.
- Studies on the exclusive testing of the safety of medical devices.
- Health technology assessment reports (HTA) for a specific product.
- Projects focusing on meta-analyses and systematic reviews.
- Creation of new registers or establishment of new long-term cohorts and / or promotion of existing registers or long-term cohorts beyond the specific research question of the submitted project.
- Development of new digital or technological tools.
- Projects to accelerate diagnosis and/or explore disease progression and mechanisms of rare diseases as covered in EJP RD JTC 2019.
- Development of new therapies as covered in EJP RD JTC 2020.
- Projects focusing only on rare neurodegenerative diseases which are within the main focus of the Joint Programming Initiative on Neurodegenerative Disease Research (JPND). These are: Alzheimer’s disease and other dementias; Parkinson’s disease (PD) and PD-related disorders; Prion diseases; Motor Neuron Diseases; Huntington’s disease; Spinal Muscular Atrophy and dominant forms of Spinocerebellar Ataxia. Interested researchers should refer to the relevant JPND calls. Childhood dementias/neurodegenerative diseases are not excluded.
- Rare infectious diseases, rare cancers and rare adverse drug events in treatments of common diseases.
A number of national and regional funding organisations will participate in the EJP RD Joint Transnational Call (JTC) 2021 and will fund multilateral research projects on rare diseases under the EJP-COFUND action. The following funding organisations in their respective countries/regions have expressed their interest in joining the JTC2021:
- Austrian Science Fund (FWF), Austria
- Research Foundation Flanders (FWO), Belgium, Flanders
- Fund for Scientific Research – FNRS (F.R.S.-FNRS), Belgium, French-speaking community
- Canadian Institutes of Health Research – Institute of Genetics (CIHR-IG), Canada
Ministry of Social Affairs of Estonia (MoSAE), Estonia
- French National Research Agency (ANR), France
- Federal Ministry of Education and Research (BMBF), Germany
- National Research, Development and Innovation Office (NKFIH), Hungary
- Chief Scientist Office of the Ministry of Health (CSO-MOH), Israel
- Italian Ministry of Health (MoH-IT), Italy
- Institut national de la santé et de la recherche médicale (INSERM), France
- Tuscany Region (RT/TuscReg), Tuscany (Italy)
- Research Council of Lithuania (LMT), Lithuania
- National Research Fund (FNR), Luxembourg
- National Centre for Research and Development (NCBR), Poland
- Slovak Academy of Sciences (SAS), Slovakia
- National Institute of Health Carlos III (ISCIII), Spain
- Swiss National Science Foundation (SNSF), Switzerland
- Scientific and Technological Research Council (TUBITAK), Turkey
16th February 2021
Pre-proposal submission deadline
End of April 2021
Invitation to full proposal
15th June 2021
Full proposal submission deadline
30th July 2021
Deadline for rebuttals
Notification of funding decision
SAS' participation in this call was approved by the resolution no. 1103 of the SAS Presidium on 8 October 2020. The Presidium allocated an indicative budget of up to 40,000€ per year (of which 15,000 € per year is an in-kind contribution of the SAS applicant’s organisation) for 1 project with maximum duration of 3 years.
More information in the attachment or at:: https://www.ejprarediseases.org/index.php/ejprd-jtc2021/
Partner search tool: https://live.eventtia.com/en/jtc2021matchmaking
SAS contact person: Zuzana Černáková, +421 2 57510118, email@example.com